re: When did you start giving the responsibilty of taking meds. to your child?
May. 13th, 2005   11:02am

being a 22 yr old F with CAH, i have learned that taking my meds everyday is very important.  My father started making me take my meds on my own when i was around 8 yrs old.  After having to take my meds on my own , i did well in the beggining and took them everyday, once in the morning and once before bed.  At one point i started to forget to take my pills. I was missing my meds about once a day during the time i had to take them at night.  I would put off taking them beacuse i was too tired and just didn’t have the ambition to get up and put them in my mouth.  My father then went out and bought me a Mon-Sun night and day pill box so i could just open it up and my doses were already there waiting for me, and so he knew that i took my pills.   As a child it’s  a big responsiblity for them to learn that they have to take their meds on a day to day basis or they could get very sick, as i have learned from that.  I have put my father through hell growing up making him constantly count my pills to see if i had taken them for the day.  Eventually I started taking them as i should.  I am moved out of my fathers home now and now on my own.   i only have to take my meds once a day now. I still find it difficult to remeber to take them on a regular basis knowing it can make me sick.  i also have the problem now of not having enough money to buy them when i run out.  there’s no programs here that i know of that are willing to help me pay for them or atleast pay for some of them.  For two perscriptions i take it costs me 72 dollars a month for even the generics.  As a child i was taking Cortef and Florinef, the doctor has changed my meds soo many times it’s confusing.  I Have been taking  Fludrocort and Dexamethasone now since i was about 13 yrs old.  i have gained a tremendous amount of weight in a small anount of time from the dex and have very disgusting and emabarrasing stretch marks.  Actually i look like one big walking stretch mark.  As a young Female it’s hard to deal with that. 

michelle
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