I am curious about your pregnancy.  You said it was high risk.  What exactly was wrong, if you don’t mind sharing.  I ask because I had a pic line put in my arm to my heart for 7 months of my pregnancy because I couldn’t stop throwing up (in the beginning it was like 17 times in a day) and I was dehydrating so rapidly they ended up hooking me up and I was taking phenergan (sp?) and zofran throughout.  I couldn’t touch anything to my lips, including water, without heaving.  As time progressed it seemed to get a little better but I could only seem to lick the salt off everything, like chips, pretzels, etc but couldn’t eat.  They called it hyperemesis but because my daugher gets like that now, I am still not convinced it wasn’t related.  I didn’t know about CAH until she was born so I didn’t do any tests during that time.  It truly makes me wonder about carriers, though.  I mean not everyone has the same experience but it might be because of the type of mutation one carries.  I am harldy ever sick but when I am, I feel like I could die.  Could be a tolerance thing but again, I am not so sure.  My dad, sister, and brother have awful migranes that make them throw up and my sister (after looking back on medical records) actually wore a bracelet that said she had an adrenal insufficiency and they thought she might have 3 beta CAH.  She didn’t wear it for long.  Her tests would sometimes be high on 17 hydro tests but them sometimes not.  Later on in life she was diagnosed with PCOS.  What it all makes me wonder, though, is if you could be a carrier with an effect in that when you get sick you don’t pick up in your cortisol as much as you should, maybe blockage etc.  But since I was tested when well, I wouldn’t know.  I keep thinking that maybe my sister was teste sometimes when well and sometimes when ill so her levels might change then.  I would be interested in hearing more about yours and other carriers info in regards to illness and what sort of mutations they have. 

Ramble, ramble, sorry!

RebeccaM