Hi Paul,

Thanks for posting. I have 4 boys and my youngest two have CAH. They do everything my older non CAH boys do and I plan on never letting them use CAH as an excuse for anything. I do realize that CAH can kill you but with today’s medication and knowledge, I feel that it shouldn’t.  One CAH support group said that their goal is to make CAH more of nuisance than anything else. I agree. CAH is just part of the person not them entirely.  I am lucky, or I should say that my boys are lucky because so far they are doing great.

I too feel that there is sometimes so much negativity on the board but we are all human and some on here OVERREACT majorly!!!!!!! If you even try to say that CAH is a livable condition that does get better as the child grows and that the child can be "normal" they jump all over you.   I also don’t agree with the whole SSI thing. I think that just sets up a kid to think they are disabled and that they will always need a handout to make it. Also, most of those that are not having a hard time, rarely post. I post mostly to help out new parents who are just finding out their child has this condition or to respond to a post that moves me, like yours.

So, good for  you. Glad to hear that you are doing well and did well growing up.  We all have hard times but it makes the better times even better! Right?! It seems that you got to a pretty good height as did your brother with CAH.  Out of my 4 boys my oldest, non CAH  is shorter than my 7 yr old, also non CAH. My 4yr old is 95% for height and weight and has been from the beginning. My 1 1/2 yr old is more in the 50% percentile so I think he will be shorter but we’ll have to wait and see!!

What are you doing now? Are you still in college? What career are you heading toward if you aren’t already in one?

Thanks again for your posts.

Sandra