re: re: I wouldn’t call it negativity....just support needed...
May. 24th, 2005   8:10pm

I agree. It is tough out there some days against CAH. But what I think everyone has to understand is that message boards usually are a place of support. People seek out communities they can come to and relate and share their stories and lend and lean on shoulders they so needed. So I seriously can’t see someone sitting down at a computer and thinking, "Hmm, gee I am so darn happy I have to find a place to share it." People are out there happy and doing their thing. Livin’ their lives. So you will find more negativity in a community like this. It is the nature of a support board. I mentioned below the main reason I got a computer was to not only educate myself in the world of CAH but also to find support. When I found this support I felt part of the world again because unlike Diabetis, you can’t find CAH down the street from you. You can’t find another mother down the street when you are having these bad days to bounce things off of. That is why this place is here. It connects all of us. And yes if you read too much of this board it can get you down. When I first came here I cried most of the days that followed. When I joined this board I read about two chlidren dying, and then some. I couldn’t breath. But then I educated myself and gained power against the worry. I built on my faith in God and went from there. My husband would beg me not to come here some days. But through the years I have taken the info. I have found, absorbed it, bounced it off my daughter’s endo. prayed on it if I had to, moved on. Keeping some of it, sharing some of it, and releasing some of it.  I found myself taking many breaks when it it too overwhelming. I found myself feeling good when I lent that shoulder I so needed to cry on a year before. It is the nature of a support board. So I love to hear good stories. It is good for the soul. And I agree we do need more of it. We can all use positive vibes. Because it helps us through those really horrible days when CAH isn’t so pretty and isn’t so nice to our children or us. Thank God for this board. And everyone that contributes to it. Good, bad, positive, negative or otherwise.

Laura
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