SandyMy earliest remembrance as a child was being potty trained. I would stand up at the toilet and pee like daddy. Why did I do this? Well lets break it down. I was born with severe virilization CAH, so I looked like daddy, right? We come into this world the most innocent creations and only seem to be screwed up by the society we grow up in. My family was built on liberal and radical concepts, but overtime realized that they could not use their children to fight the stigmas in this society, you have to fix society first.
Lets 1st look at a general concept, Child development. Now everyone knows that ever child develops physically and mentally at different times, but all will reach the same development of walking and talking at some point. This development success from some form of trial and error process of acceptance. Acceptance, from what? Well of ourselves, media, parents, aunts, friends, doctors, neighbors, etc.. Lets just say everyone is a critic and blame is always there as a safety net. In society today people never stop giving the finger to an easy target. Do you know why CAH is like a giraffe in the room, here is my theory.
I believe in and cherish support groups, message boards, and any form of grief counseling, but the difficulty of these things is the amount of society stigmas that involve our plan of action. CAH was discovered in a time that if it did not fit the norm then a stigma was placed such as homosexuality, hermaphrodite, infertility, and basic undesirable qualities to calm society’s fear and make everyone else safe in their bubble. Move to present day, we have now excepted these stigmas (at no fault of ours just generational programing) and have lost focus on how to find a cure (yes a cure) for CAH, instead we (associates of CAH) have focused on the stigmas. So parents of CAH children know your feeling of failure is shared by all parents and CAH survivors (yes that is what we are, survivors), don’t bring yourself to concentrate on these stigmas and use your valuable time to answer such questions as: Why are pharmaceutical companies stop making medications? OR Why has medical research been cut? OR Why has the medical profession been handicaped from insurance companies? OR Why is most CAH "research" material bases on the basic results and lost focus on basic function?
Stop being societies scapegoat and lets get "radical" on society by pushing the government, big pharmaceutical corporations, the MEDIA to focus!