Dear Sandy,

It’s great that you have seen your focus when it comes to CAH. Maybe another room has been added to the CAH house. Cortisones are the cheapest effective medication for many things and that is why it’s there but with your vision things can be more. Wasn’t aware the research for CAH at the NIH had been cut was told money was good thanks for the info because it was interesting about how they are trying to help people with CAH become just carriers instead. I’ve read that Dr. New is also doing research in this area and read she could see this "happening in her lifetime." I’ve always wondered why in general and CAH specific why insurance companies seem to have the upper hand when it comes to medicine and why such intelligent men/women are being sucked down by all this. I was at one doctor who instead of finding out really where the anemia was coming from was interested in giving me weekly iron and telling me how bad it was in his own country and could you sign or petition to cap lawsuits? Which I gladly did but wished he had been interested in me as a patient and instead of following the other doctors assumptions just took a couple of minutes to think about that maybe all those other doctors were going down the wrong path and here before me was a patient that needed help in the field that I was trained for being oncology? three different oncologist didn’t even consider cancer for me and that hurts never even mind the four doctors who it wasn’t even their specialty. Nobody wanted to order biopsies anyway the gyno didn’t want to go in their because of reconstructive surgeries and the risk for him yeah the first test was negative but he and me too never counted on getting the cancer that is harder to detect would i have sued him? nope i just wanted help and not  his concern about those surgeries and reading how being born like me must be traumatic shhh careful what is said to her. Any symptoms weren’t a cause for concern. CAH research is so generalized and seems to only help those that don’t have CAH explain themselves. I would like to know if someone with CAH is more prone to auto immune conditions like Celiac Sprue, MS, Lupus, Thyroid Hashimoto’s or what about the long term steriod use as it relates to being able to fight off different viruses? I would like educated studies of this nature. So yeah so of us with CAH are going to be lesbians,  some of us aren’t, and some will sleep with anyone. Many will act accordingly based on family and personal beliefs but how does this help the little boy or girl in the hospital who is sick and the endo isn’t there? God forbide if I get into a car accident I’m not counting on having solu-cortef being administered even with my medical alert braclet I’m hoping but I’m not counting because I’ve heard Simple -Virilizing Congenital Adrenal Hyperplasia ??? What the H***is that? I don’t knock the others groups out there talking and they have every right to becasue that is their focus but I  clap for you also because you have your focus. How would you like CAH to be presented to the media? Or taught in medical schools? the Intersex SocietyNorth America is preparing phamlets for medical centers plus lecturing at medical schools in CAlifornia  and other places would you like to see  CAH  groups do the same thing? Would you like CARESFOUNDATION to go this way?

All the Best,

Aimee