Sandy,

You’re a trip and I like that. I had some neat ideas about getting CAH out in the media not for shock value but rather for education and testing because one in a hundred people have late onset adrenal hyperplasia and don’t even know it or even CAH because it isn’t that uncommon. I thought that LOCAH is a great place to start and everytime I go to the local coffee places I’ll see someone and I just wonder if they have that. But many parents and some with CAH want this birth defect to stay in the dark and how would you address those concerns?I’m sensitive to that part of the population also.

Back to the CAH research, Do you know about the caresfoundation?

"medical schools, lets give them the resources to be more efficient" would you be willing to provide more info about CAH to your local medical schools and/or Hospital district?

"teach our medical professionals to treat the problem and you will treat the patient" if you are talking about a medical condition? it’s treat the under lying cause and then you will treat the patient. Patient says heavy bleeding lets find out the root cause 7 different smart people all stated anemia from this or that and the first three oncologist ...nope not anything cancer related and don’t bring up that gyno area except to satisfy our curiosity about the external genital area/ CAH. The adrenal gland part? Oh yeah ooopps my time is up with you  >  : 0 but thanks for the co-payment : )

Doctors are busy with cya about the insurance companies and the only way insurance companies are going to listen is if the public diverts attention from "reality TV" ?, hearing about M. Jackson or the the Runaway Bride and comes together as we the people to deal with insurance for real. This will happen only when the house of cards fall in on more of the middle class.

Did you know that less people in medical school are picking endocrinology to study and the field is small enough as it is?  I’m very lucky to have the Endo that I do and he does his best with the CAH.