I know I sound RADICAL and idealistic, but the biggest movements (women voting, AIDS, homosexuality ) had people that wanted to stay in the dark to, but it was for the radicals that changed peoples thinking.  I feel and believe you have a big heart Aimee but sensitivity is what has keep this in the dark to long.  The problem is no body ever wants to shake the boat.  So my point of presenting a shock value is only to get people interested and the education will always follow.  Oh yes, thank you for correcting me "it’s treat the under lying cause and then you will treat the patient" you are very right. When you asked if "would you be willing to provide more info about CAH to your local medical schools and/or Hospital district? ", I do.  Actually my sister (also CAH) and I have been in a case study at the University of Iowa Hospital (a medical teaching hospital) since birth (I am 27).  We do all our medical, surgery’s and testing there, also volunteer for case studies by endocrinology dept. Recently I gave birth to a daughter, which was thought to be impossibly, it was through very experimental infertility medication cocktails and close monitoring.  The problem was there was no written research or studies stating how pregnancy effects CAH patients and the child. I went though many anxieties and adrenal shocks due to lack of information.  Even now doctors are trying to figure out why my "levels" are uncontrollable and I feel completely satisfied with being a science question mark. My husband is always appalled by how the doctors treated me like a "freak", but I tell him that when all those students and doctors come in it is hope for me that they are making a movement. To let you know alot of the procedures are not covered by my insurance but I feel it is something I have to do for the future of CAH (lets just say I have a great payment plan set up through the hospital).  My sister also employed by the University of Iowa Hospital doing research (she is a research assistant), she always says how she would love to do research on CAH, but there is no grant funding for it and Endro is a less glamorous of the medical specialist, this due to the complicated and lack of information.  All I can do is continue to put myself out there, hoping that the ball will start rolling and that people will realize sensitivity to CAH is much different then being sensitive about your appearance.  My question is why are people afraid (or sensitive) to this birth defect, it’s not like it is tattooed on your forehead for everyone to see?  Oh yah, I have CARESFOUNDATION on my favorites, but please feel free to tell me more then what I can find on the INTERNET (mozzdesigns@yahoo.com).  I have never found anyone in Iowa that has Virilizing CAH.