First off I would say I suggest that you change the subject when the topic comes up I am going to assume that this is something that you have already tried. You may suggest discussing it at a different time, but never say if front of him, when he isn’t around, kids pick things up quickly. If it were me I would go to step two. Consider the fact that your family does love you and your son and they want to know as much as possible. Knowledge is power and it takes fear away, if they are left in the dark about your son they will imagine the most awful things, hearing it from you brings comfort to them. At this point I would let them know that you really do enjoy informing them about your son, but that you are somewhat concerned about making it the main focal point in his life. Explain that you want him to live an extremely normal life as many people with CAH do and you do not want to focus on it. You would rather focus on the other positive things in his life. Make sure your family knows that you are very genuine about your feelings otherwise they may try to point out that you don’t want to talk about it because your are in denial, selfish, or embarrassed. I find great rewards in sincerity and letting people know how you feel.

 

Paul