LauraI have heard of only one other person that fasted before hand in the 5 years I have been on this board. I find that interesting. Ask your step daughter what her reasoning is. Getting up at 5:30 a.m. for the first dose is what our endo. recommended early on. This is when the body makes the most cortisol naturally. Well in the early morning. The Circadian chart shows this. I was told to give the largest dose then to suppress the androgens. But as I noticed on the posts below, other endo.’s have their own reasons to give the largest dose at night. Go figure, but what works for one may not work for another and so on. That is one thing I have found. Every CAH patient’s treatment is different in small ways. And what treatment was used when you were growing up has changed in some ways too. Didn’t they test through urine then instead of blood? Boy how easy would that have been for our kids to pee in a cup instead of get these blood draws!!! You are spoiled to have your step daughter drawing your blood. (wink) You better be nice to her! She can hurt you. (smile)
Was it you that mentioned on this board that you suffered from being overweight and sometimes depression? Or was that someone else? I just wondered what your endo. did for it. I think of this because the methods of caring for a CAH patient are so different and have changed in the past. Like I have an uncle that had juvenile diabetis. He kept his sugar level extremely low like they first told him about 40 years ago. Today they told him he kept it too low and now wants it higher. They said it damaged his system keeping it that low. He was so vigilant too it makes me sad to see him in the state he is in today. Long story but anyway, I just wondered if they changed your treatment as the years went along. Or did you feel what worked for you then works for you now and forget that new stuff? Do you happen to remember or have any records of what the normal OHP levels were then or did the standard not change that much?