louisecongrats! my son who has swcah was diagnosed at 12 days old and was in severe adrenal crisis. was in the ICU for a while. unfortunately, he was born at christmas 2003 and the state screening offices were closed at christmas, so his was late. however, that is all in the past now. we HAVE had a few "crisis" issues when he has had stomach viruses, but other than that he is very happy and healthy. just curious.....did they begin treatment on your child already while they wait for the results???
louise