My CAH daughter is now 6 1/2 (about to start first grade). She has gone through stages where she really hates being different -- from taking daily meds, to having to wear a MedicAlert bracelet, to the blood draws, dr appointments, you name it! Olivia even sees her arm being different than mine or her siblings because she has a bracelet on it. I don’t see it that way, but then I’m not the one wearing it.

I have talked with her ped endo and the endocrine nurse about these things. They assured me that some of this was normal -- kids with chronic conditions can/will feel this way. They referred us on to a child psychologist who specializes in children with chronic issues.  About the time I was finally able to touch base with this Dr, Olivia worked her way through her issues. We will, however, be meeting with this doctor as Olivia gets closer to her corrective surgery (vagnioplasty). Everything I have ever read indicates that this will be a crucial time.

My recommendation would be to touch base with a professional -- psychologist, counselor. These folks can be just wonderful.

Janet