Hi Antoinette,

Congratulations on the birth of your twins! I’m sure it is very exciting and extremely stressful at the same time. My son Marcus was born with CAH also. He is now 5. I remember those first few months after he was diagnosed being incredibly difficult. I had to give him so much medication and I never felt like I was doing anything right. I felt like I spent half my day preparing and giving medicine. And I only had 1 to deal with!

Having a newborn is difficult. Having newborn twins is overwhelming. Add to that a chronic medical condition and 3 other kids to take care of and no wonder you are feeling scared! But hang in there! It really does get easier. I read everything I could find about CAH but it still took a long time before I really felt like I understood his condition. Even now there are a lot of things I don’t totally get. However, I do feel much more confident about dealing with illnesses and that type of thing. And we don’t even think about giving him his medication anymore. It’s just part of the daily routine.

What medications are they one? Are you giving them sodium? I hated the sodium...it was so hard to get my son to take it.

CAH is very difficult at first. But it is a completely managable condition. Your babies should have a normal, happy, healthy life. You will find plenty of support on this board. It was a lifesaver for me.

In addition to the CARES Foundation, the Magic Foundation offers support for CAH. They are located in Chicago and I think they have conference every July. If you can find the time, it would be a great way to meet other parents of children with CAH. I think their web address is Magicfoundation.org or something like that. I think there may be a link from this board.

Good luck!