Congratulations on the birth of your babies. My son is now 16 months old and I felt the same way when he was diagnosed at 8 days old. It does get easier, I promise. It sounds like the doctors are just trying to get your babies dosages correct and that is why their potassium levels keep climbing. My prayers are with you as I know it is very stressful. Quick question, are your babies boys or girls??? You didn’t say in your post and I am just curious.Robin