What makes you thing that if so many doctors refused to help you with your little photo hunt that maybe patients would? For the money? Are you kidding? I think that it is funny when people like you come around to do "research papers" and "essays" fishing for photos and information. It always starts out with " I’m not trying to offend anyone but,....." And it always does. I have worked extremely hard as a mother to understand this condition and I did it all with the resources that are available. I don’t think that it is too impossible for you to do the same. Ugh!