My son is SWCAH and he si 4 and he weighs only 28 pounds he has been very small all his life. He is about 33inches tall. He was born weighing 6.1 but has never done very well. He i think weighed about 17pounds when he was 2. He has had NG tubes put in and everything. he has always been 5 percent below on the charts. And he is slowly going up. The endo at Rileys’s wanted him to have a feeding tube. But, they could not tell me when we put it in if it would work or not? all they said was worst case senerio is that he has a scar. I said heck no!! So he is just a small little boy. But he is so srtong though i think. But maybe someday he will be 7foot tall like my brother!! Hey i can dream right!! LOL. Well, I hope that everything works out for you and your family. GOD BLESS !!! Misty