Mica...... Thanks for understanding that sometimes I don’t always THINK about what I post. All of this is so confusinig and the terminology is very cross referenced as some DRS. and NURSES  do use ugly words to express ambiguos genitals. I have overheard several conversations in lunch rooms and cleared some doubts of some nurses that are friends of mine. One being the teacher of St. Marys hospital in WVA! I explained to her how degrading and hurtful terms can be to the women and children that are born the way they are born. I am taking Aimee’s recomendations and writing to as many as I can about the intersex issue. I thought the word deformity would be less degrading than some of the others I have heard so I chose the worse of two evils to describe how  SOME people describe our children. Do I feel anyone is deformed.....no I don’t as we are all given what GOD chose for us to have. But I do feel fixing medical problems with genitals take first priority over cosmetic. We are all going to disagree on some issues of this disorder. The ONE thing I think we are looking for in a common bond is the respect and dignity and treatment of this disorder,,,,,, plus a WAY to get the medical field and GQ public to address our childrens problems in  medical terms that do not place a stigma on our being. The hurdles of challenging medical problems are enough to deal with much less the constant battles of keeping our dignity in tact. I wish I had the answers and the armor to protect everyone from the pain of this disorder both physical and mental. But Lord knows everyone of us are doing the best we can and trying to find our own path in the medical world of uncertainty. All we can do is trust our support group and KNOW that we are in this fight together for the better of CAH and our woman and children.  Someday we may have a cure and our prayers will be answered. I continue to think positive for my Granddaughter and promote her illness and awareness of CAH. I think communication on this board will help us all to understand the views on both surgery and non surgery care and also the vocabulary that makes  us all feel comfortable with some of the descriptions of our bodies. AGAIN I apologize for being insensitive to ANYONES feelings and views.

Sincerely

Cherry Lane