re: re: to Cherry
Jul. 4th, 2005   1:38pm

 OK NOW I am REALLY CONFUSED! When did I use the comment H**** D*** and what does this stand for? Yes I say what I say and try to do so as to not hurt anyone. But I can’t balance my comments to please everyone or I would be lying to myself and not posting my opinions as I believe is what you are suppose to do on the board. I don’t HONESTLY KNOW what I would do if myself or my child was treated by the medical profession as some have been treated.  I can only suspect that you would feel the same way I felt being violated as a child by a nasty UNCLE in a closet. Photos and  viewing ones privates for others to see for medical reasons or not I think is a legalized form of abuse. I would not allow my child to be photographed by ANYONE FOR ANY REASON! I would attack PHYSICALLY any one who would tell my little girl to open her legs wider and please the good DR. As I feel this is  degrading and unprofessional. Yes...Aimee I KNOW you have been photographed and treated terrible in the name of medical science........... what was done to you is unforgiveable and will last you the rest of your life. But in my opinion you have coped very well. It is for you and your honesty that has made us aware of HOW MUCH the medical field needs to change their direction on exams and protocol with children. You have given Parents a TRUE feeling of what and how our children would feel. For this I will always be grateful. I think you thought maybe I was siding with Chris on wanting to get photos . NO WAY !  I am totally apalled that anyone would come to this site and ask for this from anyone who has CAH. NOW......... Hopefully with THAT clearfied I can address the fact that I may have insulted  your physique in some way. I am probably one of the most non judgmental people one could ever run across as I NEVER judge a book by its cover. I take people for who they are........ judged on there souls not there physical being. I could care less how woman are  built or there privates as it is a personal  thing.  I KNOW my granddaughter can have a dick on her forehead and I still think she is beautiful and if she is pround of it and wants it to stay on her forehead then by golly this is where it will stay UNTIL she wants to change it. BUT if the D*** keeps falling in her eyes and cause her the risk of going blind and she is too young to recognize this I will have it removed and save her sight. Just because it would prevent her from seeing all the beautiful things in the world to see. THIS IS AND ALWAYS HAS BEEN MY STANCE ON SURGERY! IF it can help my child to function better and bring her better health.......I vowed to GOD to do what is best for this child in raising her ...so I am. I do not understand the need to continue to debate an issue that will never be resolved one way or the other. I do understand the need to correct the terminology and misrepresenting facts that are correlated with CAH.  How do we fix it? I agree write and write again! ON the issues of using different names.......... It does not bother me as I think we all sway on our posts based on who we are talking to so we won’t hurt someone. I at least try too. I feel you have endured your hell on earth with your battles and I would NEVER say anything to hurt YOUR feelings and I think you know this. If I did so in a post not knowing it was you ...shame on me and I am sorry. Anyway all of this is just a little to heavy for me. Maybe better left to the younger to debate and decide on how someone with cah wants to be represented....other than just like anyone else!

Sincerely

Cherry Lane

Cherry Lane
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