re: re: re: to Cherry
Jul. 4th, 2005   3:18pm

Hey Cherry,

It’s OK , you’re fine.  On the controversy board the H****D*** was used in the thread Recent citations that may be of interest.   re:re:re:re:re: citations that may be of interest to Aimee  Jun 3rd, 2005   words at the end of the post.  

I think Chris came here just looking for maybe an easier way to get his pics for a book that I would doubt shows the complete picture of what CAH is about and someone passed him along info to a Dr. and her assistant that would help him out with the business transaction that he needed. They get their $200 and names under the picture. It’s just business to them. Either the kid is goingto be cracked up by that or they aren’t. When your looking through books latter on what you are fine with others have your face blocked out or just the crotch shots. There are power points of us out there and the ummm pictures that are taken ummm So, yeah first and foremost she’ll know what she looked like from before yepp it’s for her benefit yeah these are viewing/training pictures of curiosity of what not to look like externally based on someone else’s judgement and that judgement by some doctors and parents  is and was in my case widening about the need or time of any surgery. Parents and doctors do wha they think is best in whatever decade they are in.This decade has more information so the can give more info if they choose

He only wanted pictures of ambiguous genitals ...hummm no pics of stretch marks, excessive hair, or acne? no interest in that not all girls with CAH are born with people not knowing what the heck they are externally? He didn’t want any after surgery pictures either or interest in the DEX or that boys can have CAH also. This employee only wanted certain pics that he could put next to AIS and that’s all. How does this benefit the endocrine condition CAH?..SIGH

What ever parents do when it comes to surgery for their kids- it all needs support. Really the kids that have surgery today will benefit the ones of tommorow or the ones that can wait for whatever reason. For each generation, I like to see things getting better and better. Then the younger generations can get an idea of what it may feel like to get older with CAH From us. There were some people in their 50’s that posted for awhile and that was awesome because I learned so much. The cortiosnes came around what? in the 1950’s?   I learn so much myself by this board. Plus you learn how this condition is viewed at times. Which is by people expressing geezz post away on everything You’re a trip and honest. From what I gather is all you want for your granddaughter is to have a place at the table where you are familiar in your comfort zone. Others have different comfort zones but the house of CAH has many rooms  : )

I was wondering where can I get a job like his? Going to message boards for the quickest info ..like going to the honey bee.   

I think you are cool Cherry ...always.

Aimee

Aimee
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