KirkMy son (Luke) is doing fine. You can’t even tell that he was terribly sick a week ago. However, my wife and I are having a hard time sleeping at night because we are afraid of it happening again. We had no warning sign whatsoever.
Luke went into an adrenal crisis when he was 7 days old...but that’s because he was undiagnosed at birth and wasn’t on medication. This crisis was worse because he has been on cortef and florinef....and it still happened. Hopefully, as Luke gets older, he’ll be able to tell us...or himself....when things don’t feel right.