I can only imagine your stress. What did his endocrinologist think? How is his sinuses doing? You know the only advice I can give is this. Be vigilant the best you can be. You do your research, you keep an eye on him, watch his levels, give him his meds. and then....give it all to God to take care of. Sounds easy sure. I am not sure who your "Spiritual Director" is, but I know without One in my life I would go crazy.  No this isn’t a "save you speech". I am just sharing how I have coped with the anxiety, and worry that CAH brings in our lives. I am throwing all my "politcally correct" posts to the wind today. This is how I cope. When I first found out my daughter had CAH at birth, I was devasted and scared to death. Scared I would loose this bundle of joy I fell so in love with even before she even emerged into this crazy world. Each sickness she would get I would fall apart. I would have to step outside for a moment so I could melt down into a heap of sobbing prayers to God. Making these magical deals with him just so my child would live. It took going on a weekend retreat with my church to know, God is always there to help us. He doesn’t need and dealing. Once I let go, let God I found the grace to get through the worst times CAH can offer. My stomach still churns when my daughter is fighting some high fever, or virus that makes her puke. But I keep my focus and calm through relying on my God. It has made a HUGE difference in my life.

Another thing is this. As they get older it does get better. The do start to tell you when they don’t feel well. And once they get all those nasty bugs as toddlers, they seem to level out somewhat. It depends. But whatever the case is, it does get better. And it gets MUCH better when you have some Divine guide to get you through it. I always think of this. You know God loves our children more than we do. He knows what is best for them. We just have to trust what is best for them and know that God wants the best for them. After all they are truly His children. God bless. Find that peace. I will be praying for you.