re: re: re: i guess everyone with cah is different??
Jul. 13th, 2005   9:44am

we have a 10 month old and everything has been pretty easy except at the beginning before he was diagnosed they dont’ test at birth for CAH in nebraska.  They are working on imlementing that this yr

we haven’t had any hospitalizations since he’s been diagnosed and on meds.  No emergency shot either thank goodness.  he’s also 25% for height and about 75% for weight.  The doctors ped endo and ped. don’t seem to be concerned with his weight at this time.  I think a lot of babies are chunkier as they grow they burn off more.

I am so thankful we have had a fairly easy time with his CAH but I do realized it could be a long road ahead just one day at a time.

Jill S
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