To anon-I’m glad things are going well for you and your son.  In my situation, my daughter at birth was not diagnosed-because the ambiguous genitalia was not that apparent.  But she started to grow very fast and the genitals changed, so our regular ped referred us to a ped endo, who immediately hospitalized her and started IV meds.  As for many parents, the whole process was shocking and emotional.  Amazingly, my daughter did not "crash" as some kids do.  My daughter has developed normally and is healthy.  But her sister was a toddler when she was born and sister brought every virus known to children in the house and subsequently baby caught everything.  We had many ER visits as a result.  But once she grew and developed a stronger immune system, the ER trips stopped.  She had one visit in kindergarten and then no others until this year-third grade.  The combination of emotions and ER visits made it tough, and having a girl and dealing with surgery.   I think it has gotten easier as my daughter gets older, and we as her parents have learned more, dealt with her symptoms and yes through the support of this board.  I pray for this for all parents-that they will feel supported through this process, however you find that support.