aimeeNot having enough cortisol makes me actually physically not feel well and that is why your post was great. What appears as depression to apathy to final oh screw it indifference might be lack of cortisol or some form of mental condition that may be helped by other medication to help the brain receptors and all this is different..apart from CAH. To much cortisone may make you wacky too. I’ve been there and it sucks making school and then work difficult- I’m writing about my experience because someone else w/ CAH might of had no problem. Your son will not have to deal will that and that is progress and it’s about time.
I live and go to work with CAH every day. I just spent the last six months in on and off pain from a urinary tract infection that advanced to burning pain to finally bleeding as this was going on the endo nurses were just chalking this up to depression even though lab work was great. In this time period I also went to some psychiatrists and their response was you have medical problems not psych related. Mean while the infection is making it harder for me to do physically work and the boss is looking at me like their is something wrong. Desperate I went to the ER and was blessed with a doctor that went UTI and gave me help for that. The amount of time missed from work besides the UTI that was progressing into something more serious is frightening. I’m very lucky have found a job that is understanding. I wonder about Cathy’s son in that does he jump jobs becasue he isn’t feeling well or something and was thrilled to see your dosing post also.
I have way to many other examples where my medical problems where thought of as written depression smirked at by medical doctors by told again by shrinks that you have a medical problem. If I had been really listened to by seven different doctors instead of the she has this condition must be depressed about it and what she is saying is no concern mean while it turns out to be cancer. I couldn’t concentrate on the darn job because I was busy growing the cancer which I hope is gone. Medicine isn’t perfect and is brillant for the most part like with your pump and helping me with the cancer after it was found but here is something that I would like to address in that and gosh please don’t take any offense to this and even though we have a medical condition we are still people. Cathy’s son did well in school which is a plus and a sign here meaning that school didn’t stress him out much know did it? but I know at age twenty I was using the CAH to get out of work early and go have some fun and coming to work the next morning was stressful because my head was pounding and lifting anything wasn’t going to happen this having nothing to do with the CAH (I keep in mind this is a family board) At age twenty someone is finding themselves. Having trouble keeping a job? maybe also the the depression might be from not being able to keep a job for whatever reason. Is the job stressful because he has to listen to a boss? maybe learning better skills to deal with that would be a benefit?
I went through radiation and chemo plus still worked and the response from Endocrinology was assuming Oh this was to much for you which made me mad after the other doctors congradulated me on a good job. I’m rambling here but your kids can get through anything and do anything with finding out what makes them tick and what their passion is plus having the best available amount of cortisone is a good thing like you posted.