My daughter is about to be 14.  We went for her endo visit last week, her file is 5" thick - she is in perfect health.  I have kept every appointment for the past 14 years.  She is also quite thin, very tall for a CAH SW patient, dr said something like "maybe the tallest CAH patient in history..." she said it in a joking manner, but I remember when she was born I was told she probably would be around five foot tall at most. She is now 5’6" and weighs 112lbs.   We had a little problems keeping hormones in check when she was going through puberty, but other than that, her meds have been adjusted for growth.   She is active in school sports and a normal teenager in everyway - even the bad ways.

I think most people who are chugging along with a CAH child having an easy time of things dont post.  The posst are from thoes who are having some problem they need advice on, or support to get through.   Some of the stories here are heartbreaking, but I don’t think they are the "norm" for CAH patients.

I am also very thankful that my child’s CAH is in good control and she is healthy.