I am diagnosed with SVCAH, 27 years old, married, mother of a 11 month old,  currently been taking for past 7 months 40 mg of cortef and .1mg of florinef daily.  My 17 ohp levels have been over 2700 (at that level as if I was being untreated) but my ACTH levels have been in normal range, considering I have religiously all my life medicated 3 times daily every 8 hours.  I have also been experiencing loss of vision in 15 sec incriminates 4-5 times a day, periodical numbness in fingertips, consistent urinary tract infections and recently been diagnosed with intestinal inflammatory/infection, along with periodical adrenal crisises.  I live an extremely healthy life (no drugs, alcohol, caffeine), exercise, eat all my veggies and fruits :), I have just been extremely frustrated with being sick all the time and the numerous medical testing that has left me banging my head against the wall, at times I feel as if I am a crazy person because nobody can have all these problems without it being in their head, right?  I have already experienced in my past 3 reconstruction surgerys, reflux surgery/diagnoses, infertility issues, What Else!!  Has anyone experienced any of these things and how was it controlled ?  I have found that all this has happen after the birth of my (unaffected) daughter, coincidence? I am in desperate need of help and guidance!!! 

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