http://www.caresfoundation.org/

http://www.hopkinschildrens.org/specialties/categorypages/cah/cah1.html

 

These two are pretty helpful. I am not sure what type of CAH your daughter has so you may have to continue reading further for the John Hopkins website. That page links you directly to CAH due to the 21 hydroxylase. (Salt wasters) It has a lot of good information. BOTH sites do. The CARES FOUNDATION was created by a mom from this board. She is excellent with info.

I forgot to add why your daughter has genitals that are different. To make a long explanation short, she was exposed to, too many hormones called "androgens" in utero when her genitals were being formed. This was due to a missing chromosome. This made an imbalance in her adrenal glands. To read more into this go to these websites. Educate yourself in CAH as much as you can. It is your best "defense". Blessings to you and your daughter.