Terminology is very important. Especially when it comes to children. I myself remember the first time the doctors stepped into NICU next to my baby and proceeded to tell me she had a congenital disease. DISEASE! To me that was a life sentence. My first reaction was, "Will she die from this!" Disease is a word that has many different meanings to people. It can me death, it can be catchable, ect. My ped. has always said to explain CAH to our daughter at her level. Each year add a little more to her knowledge. Always in her terms she can understand. Using the word disease was one of the terms the ped. suggested not using until she was a certain age. To children it is a very scary word. So we use medical condition. Then we proceed to say, "It is almost like diabetes in a way." and then leave it at that. Even family members we have said it was a medical condition. Sometimes little info. if none can be better for people that do not take care of your children. As crazy as it sounds people react to people with any kind of medical condition differently once in a while. So I have always kept it to a minimum with the line, "It is sorta like Diabetes." People are familiar with Diabetes, so the answer seems to satisfy. If it is a school nurse, or anyone that takes care of her, then they get the important information they need to care for her.