Hi Wendy Lee, my mother has all of the above. It is a debilitating condition. She cannot lat down without taking nerve meds first. Because she feels her chest crushing down and she cannot breath. I feel like she is not living her life to the fullest for fear of literally everything. Not to mention depression and extreme irritability and almost always being in attack mode. It’s sad. Many people in our family, on my moms side have big tummies and little arms and legs. They are german descendants. Everyone thinks that is just a family trait, but they don’t realize that this could just be that they were carriers (maybe) Anyway, if anyone read the info I have sent, it will be my aunt. I think she takes me serious because she understand some how hormones work.

 My aunt lives in a bigger city so she will have more luck finding a halfway decent endo, but my mom now lives in a small city so it probably will be harder for her. I’ve been telling her about this for quite a while now. Life is too short. If I do find out anything I will be sure to post. I was hoping that someone here already had treatment for excessive CRH and could tell me how to guide them. Take care