Hi Amanda, I was dxed at age 25 some people can be dxed later than that. Just try to print out and read as much as you can about late onset congenital adrenal hyperplasia or nonclassic cah. We have a partial enzyme block, therefor we do produce cortisol, just not enough. People that show signs from birth are those that have classic cah and have a complete enzyme block. Look down a ways and read the post about the prader scale. It has some good info, especially for you.

 My daughter is 13, she also has LOCAH. It is frightening at first. Your child will probably have an acht stim test done when she sees the endo. There are more than one cause to early puberty. You will learn a lot on on this board, take care