Hi My son is 6 and has the bone age of a 13 year old.  They estimated his adult height will only be 4’8".  He is currently on cortef, growth hormone and lupron.  I firmly believe they are doing everything possible for my son.  My hope is he will be at least 5’2".  He is responding nicely to the growth hormone that may be something to look into.  I understand your fear,  I have it every day!  melissa