hi risty i i know what you are going through and i am terribly so sorry about your loss but he is with god and that is the best place to be i lost my cah daughter katie march 18 she was 14 months old and it has been very hard on me and my husband but i know she is with god and is in a very happy place now she did not pass away due to cah either she assperatied on some water and it got into her lungs and she quit breathing. everyone on the board is wonderful kelli,danny and my wonderful aunt cherry lane are all so great so please feel free to email and we can talk i would love to talk to some one who has lost a child with cah. i have talked to several people who have lost children but none with cah please feel free email me it does help.

 

sincerly sabrina ireland