Hi, Dilini,
Don’t worry; it is very hard at the beginning; you need some time to get over the first shocks. Don’t blame yourshelf and try to relax; your daughter needs you.
We were shocked two years ago, when it turned out that our daughter has SWCAH. She is an absolutely normal, lovely, frendly little girl. Her disease has never prevented her from doing anithing; she lives the usual life of the 2-year-olds.
Of course, there are some difficulties, but these are manageble (give the medications, salty milk, blood-tests, etc.)
Kind regards:
Tami