My little guy with SWCAH just turned 12 months old the 10th of this month.  We’ve been having a HECKUVA time getting him to grow. He weighs 15 lbs 2 oz.  He is pretty much the same size he was when he was 4 months old.  His medication dose has been changed so many times it isnt funny.  His bloodwork a few weeks ago showed that he needed a bit more Cortef but his endo decided to just leave his meds alone for the time being ( Im not really sure why). Anyway, he seems to have a pretty good appetite but getting him to grow is another story.  Sometimes I do feel like Im having to beg him to eat though...like chasing him around with a spoon!