OK,

I know this information is on the board somewhere, but I can’t find it so I am going to ask again.

We just had our Endo appt today for our 32 month old SWCAH son.  I asked again about the blood spot testing and she was real receptive to it and was interested.  I need to find out if there are any Dr’s in the US doing this. I think I remember that there is at least one family that was able to get it done here in the US.

Before we try it with my son she wanted to ba able to talk to a DR that does it.

For those of you who do this please let me know your Dr’s name. 

I really would appreciate any info.

Take care