I have asked my daughter’s endo. about his own eye exam he does on my daughter and he also talked about the same reasons as mentioned in other posts here. Of course there is the controvery, "Why check eyes if the CAH patient is replacing what the body does not make? This should only pertain to people that take steroids for things other than CAH." Well I say reality is, how many times are they getting too many? How many times in a year does it go undetected that a patient with CAH is oversupressed? Remember, this is only "snap shots" that we see in our blood test results of what their levels are. There are times we stress dose for an illness. I know my daughter shows signs of over suppression the week after I stress dose her after a long period of illness. She is puffy faced, irritable, weepy. BUT then we have her tested later, and her levels are perfect. I KNOW she was getting too much at one point, her body showed it. What makes us not believe these small intervals of stress dosing doesn’t have some kind of effect on the body? This goes right next to the argument of giving calcium supplements or not. Some say why give it if we are only replacing what the body does not make? Again, same thoughts as why check the eyes. I say why not be safe than sorry? How could you not think these steroids would have some kind of long term damage on the body? I say take a look at how we maintain CAH today and how we did 10 years ago, or 15 years ago, or even a year ago? I am unhappy with the treatment my daughter gets today. In my eyes it isn’t enough. I want more out of CAH research. As much as my daughter has been in control with her CAH, I just have this underlying worry, is it REALLY under what THEY call "control".