Just to say Caraols book arrived today. Just had a quick look and it looks superb. There are things in their I didn’t know.

The meeting was positive today and I did get some answers. Obviously he did not diagnose me but took over from the last Doc in the mid 80’s.

I do realise now so much has changed anti puberty drugs where quite new and expensive. The photo’s where at the time considered a normal part of treatment. He did give me the promise he never used them for teaching and he has never photographed a child or ordered it. He has had 4 cases of CAH born at the hospital and once diagnosed they have been refered to an endocrinologist. It wasn’t deemed nesersery to send cahers to endo’s when I was a child. New laws regarding photos are now in and under no circumstances is the face allowed to be shown. Nobody can access a file without a valid reason only the consultant. Under the 1998 data protection act when you turn 21 if your pediatric file do not get accessed for 8 years they have to be distroyed. He has told me he will look into distroying my files to finally lay the ghost to rest. I’m only a year away from this now.

He was sorry he could not get access to a support group and he took details of our support group and the mother group Climb. He does realise now how much I suffered as a child due to puberty etc.

This was an official meeting and when I get the minutes I will tell you more.

All in all I suppose I was born at the wrong time when patients where just the condition not a person as you are now. We where the precocious puberty in bay 5 etc. New laws and policys now exist to treat patients sensitively and with dignity.

Patients are supposed to see the main consultant and not past around. It was the norm back then and they are only allowed to have I think 3 Doctors in a clinic.

Examinations are encouraged to be carried out only when nesercery now and Doctors are encouraged to work with the support group.

Still all I can say lessons from the past help the future communication now is so much better then when I grew up and will get better still. I never had the internet etc and now I talk to you guys thousands of miles away.

Boy havn’t we come along way in such a short time.

Well I’m going to have a bud now and then go to bed It’s been a draining day for me.

Being in a special needs school at the moment has taught me we aint that bad especially when a child in a wheelchair for life still gives you a smile and a high five.

They would have been in institutions when I was diagnosed alone and neglected.

Anyway thanks for the support everyone and what a book I’m engrosed although I should be doing my essay. I’m going to make sure the hospital library has one and I’ve sent the details to the old consultant. After all we have to work together now and learn.

9pm here now so

goodnight

Ian