Aimee: Surgical technique has improved greatly in the past few years. Due to possible stenosis; dialations may be necessary or surgical correction can be done using a simple outpatient procedure.........but we will not even consider this for a long, long time, and it will be my daughters choice and involvement at that point. Hopefully she will be mature and well informed and completely grown up before we have to consider this. Obviously the main reason would be for sexual activity and I figure that can wait till she’s 30 or so right???

As far as uncomfortable exams by strangers and other surgeons, residents etc. this will not happen. There is no need for others to see or exam her. There will be only one surgeon she will see and that is the Dr who did her surgery. Current procedures have been well documented and there are videos and other training materials available to train residents and the medical community.  There is absolutely no need to put any child on display. It is sad and unfortunate that you had to endure this as a child. Thanks for sharing your story, it shows me the importance of being careful about who exams and treats my daughter.

CAH treatment & information has come a long way over the years. Thanks to boards like this one and the opportunity to attend conferences and other events relating to CAH my daughter will not have to feel isolated or alone growing up with CAH. She will learn from the experiences and suggestions you and others share on this site.