Hi ,

Danny comments in a post above "Unfortunately we won’t know for sure if we have "perfected" the surgery today until those it’s performed on become old enough to tell us. Hopefully the answer will be "yes", but we’ll have to wait and see" 

Actually...there are a number of females born after 1980 whose parents delayed surgery because new techniques were developing, the techniques that are still commonly used today and are thought to produce more favorable results. 

My older sister was born in 1981 and I was born in 1982 --both with CAH and both needing surgery--but my family decided to wait until 1990 to have the surgery.  Many of the recommended modern techniques discussed at the CARES conference by Dr. Rink were used on us and the results were positive - no dilation, follow-up surgery, or big problems.  A third sister with CAH was born in 1987 and also had her surgery in 1990 and has not had problems with her surgery.    

No surgery is perfect, but surgical techniques and methods have definitely improved, and I’ve talked to other young twenty-somethings who had the surgery that are satisfied or pleased with the results.

The CARES conference was great because there were a few people who openly expressed that while surgery was certainly unpleasant and difficult, they were doing well and didn’t have problems with sexual function, continence, sensation, etc. 

I think that CARES has the contact information of people who are willing to talk to parents about their experience with vaginoplasty.  

Alison