I am so concerned about your baby girl.  She has been diagnosed with CAH but no one has prescribed medication yet?  This is ludicrous!!  Don’t let them give you the run around.  I would immediately go to the ER and do not leave until they treat her for adrenal crisis due to CAH.  Have they tested her electrolytes and sodium? Please do whatever you can to get her the meds.  If she has CAH she most likely needs a shot of hydrocortisone now.  She should be on oral meds of hydrocortisone called Cortef.  Please keep us informed as to how she is doing.  My thoughts are with you.  Julia