well I know personally I would like to have it done. My son has had problems with his heart. He has severe high blood pressure. He is treated for swcah. No one knows where or why he has the high blood pressure. It is not the florinef or the hydrocortizone. I can not except the fact that the docs say that they may never know what caused this to happen. His high blood pressure was so severe that it weakend his heart and sent him into congestive heart failure. Is it connected to the cah or not? Who knows? Maybe there is something different in my cah gene or my husbands. Maybe having a genetic test for myself or my husband could give us an answer. I just feel that the answer is somewhere we just have not found it yet.