re: re: salt wasting
Nov. 15th, 2005   5:24am

dear megan,after reading ur questions i feel so bad that i dont know the answers to most of them.My daughter was born in US but when she was 6 mths old i had to return to my country...in my country we dont have ped endo , truly speaking we couldn’t even find an endocrinologist here. Then to make matters worse my we had to move to a very small village ..now here we cant even find a good pediatrician.For her three monthly tests..like that of plasma renin we take her to a city . They do the tests but the doctor does not talk much abt it..my husband and i want to change the doc but we cant find a better one right now.

Last mth her bone age was done and it came out to be 6 mths ,though she was a yr old...but the doc said it was ok.I dont know what she we do abt that,and now I am confused abt her salt.Thank God we have this website so atleast i have u all to share my problem with. U must be thinking that what kind of country I’m living in but its the truth things are not very advancsd here as they are in America.I lost a 6 mth old baby 5 yrs back because of CAH ..at that time they could not diagnose it...then i lost a baby when i was 8 mth pregnant ,the baby was not growing for 2 mths and then the amniotic fluid also dried. Then my third baby was born in US and she was verilized and found to be SWCAH and then the Dr said that may be that was the cause of the death of my first baby. My daughter was very well taken care of when she was in US but now we r completely on God for her well being.When i read that how u guys r in touch with the endos and u guys know so much abt CAH i feel guilty that i cannot do much for my little princess who is life for me.But I pray a lot for her life ..for her happiness for her to grow like a normal girl.

I think i have written a very long message.But thanks for all of u who read my messages and also answer to it .

thanks a lot

zara.

zara
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