re: Classical non salt losing not the same.
Nov. 18th, 2005   9:17am

thank you very much.  inconsistent terminology with different documentation sources had me confused.  i finally called the ped endo and, after scolding me for looking at internet sources, he said to just look for non salt losing CAH.  it appears the internet is a main source of frustration for dr’s dealing with concerned parents.  i just want to know what life is going to be like for my son...does anyone know of a documented personal story of a young adult that has gone through non-salt losing/simple virilizing CAH.  the only stories or anything else out there that i have found are for SWCAH...

he was diagnosed through newborn screening...we are in atlanta, georgia and are very fortunate to live in one of the few states that test for this.

John
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