I have two boys 4 and 2 with SVCAH. You are looking for stories for NCCAH or Late Onset CAH but if you read about SWCAH people that are doing great that only makes it better for you child since he has a less severe form of CAH.  Some NC’s don’t even take meds. It’s the most common genetic defect none to man. Contact www.caresfoundation.com and they can get you more info. The founders daughter is a teen and has NCCAH.  She comes from a very successful family and I anticipate that she will be very successful in every way as well.

I really don’t think though that you should be concerned that your son won’t have a "normal" life.  It will be as successful and as fulfilling as he makes it. His CAH will be such a small portion of his life.  Really once you get it figured out and find out if he needs treatment...aside from doc visits....it’ll be life as usual. At least that is how it’s for us.

I guess  the answers you are looking for depends on what you want to know exactly.  What are your concerns?  I’m sure someone out there with NC can help. Have you tried the NC or Late Onset board that Danny has?

Sandra