re: sensitivity to sounds
Nov. 30th, 2005   5:33pm

How old is your daughter??

My grandson used to do the same thing! He would get real mad if anyone turned the music up or if his sister was singing in the car. When he played basketball he would fall over (dramatic I thought) when the buzzer went off or the ref blew the whistle.  I talked with his ped. & endo about this. As usual nothing is from CAH or the steriods!!!!!!!!!!!!!!!!!!   I have been monitoring this. As I keep a journal & monitor his behavior and problems since birth. I think it happens  when his levels are off. I can always tell from the way he looks and acts. Also he is 9 yrs old now and it doesn’t happen as often.

I’m no expert but after 9 yrs I think I know my child. No matter what the endos or Dr.s say alot is related from CAH. I have raised 2 children non CAH and now I’m raising my 2 grandchildren. One who has SWCAH and his sister non CAH. I have compared. I think it is a behavior problem related to CAH, steriods, florinef, electrolytes etc..................... Just my thoughts.

Jenny

 

jenny
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