CatherineMy heart went out to you when I read your post. I know that your little girl was premature and has CAH. When was she born?? Congratulations on your baby, Grace is a beautiful name.
I still don’t know that much about hormone levels, but I do know it took several weeks for my son’s testosterone to come down to normal baby levels.
My son is now 11 months old and is also Salt wasting CAH. When we first learned he had a life threatening genetic condition I also felt like screaming. He was in the ICU because he had an initial adrenal crisis. I couldn’t quite believe it was really happening. I was very sad and mad and scared.
I’m still worried for him alot of the time but at least now I am calm and know what to do if he gets sick. My son is adorable and happy. This discussion board has been a Godsend for helping me to learn about his condition. Thanks to all the great contributors on this board.