Hey Corri I just wanted to tell you that I have gotten a check from SSI today!! We were so shocked!! And you know what was so weird was that we never even got a letter saying that we were accepted!! I was like what the heck. But it is for my son who is non verbal and has fragile x like i posted above. So I am waiting now to see how it goes with my son with SWCAH. I hope we get that too. I am sorry if I affend anyone that thinks that I am being greety. I am just glad that there is something out there that can help us. I wish you Luck Corri!!!