re: re: re: To Linda H. and Bonnie (long message)
Dec. 6th, 2005   7:31am

I have a hard time remembering things but I probably told you that my son is a CAH carrier with symptoms - although I think I recall that his levels were quite a bit higher than your daughter’s, and my daughter is not a CAH carrier but has PCOS and insulin resistance.  Your doctor is against trying a low dose of Cortef?  I know I had a hard time convincing someone to try it but there were other doctors out there who were OK with it.  I know this because someone told me that one doctor posted an insulting email to the pediatric endocrinologists of the world calling me a PIA (figure it out) and asking if they would try it and some said yes.  But my son’s levels were something like 380 - 1180 on the stim test.  Did I ask you if your daughter took the test first thing in the morning?  It will be higher then.  I even thought about trying to get cortef myself on the internet but I had a very hard time finding it.  It’s a cheap drug and there’s no black market for it so they don’t sell it.

For the insulin resistance - did she take the OGTT - fasted 2 or 3 hour blood test?  I don’t know anything about the FSH, LH or estrogen.  I haven’t paid attention to this with my daughter - maybe I should.  I’ll ask my doctor for her labs and we can compare notes.  My daughter had a cyst on her ultrasound so she definitely had PCO.

bonnie
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