Thanks for all the interesting replies.

I do feel that my presence at sporting events makes it possible for him to do all he wants.  The only sport I’ve discouraged is football--but I think I would have discouraged that even if he didn’t have CAH.  As for out of town ovenight events without one of us--it is certainly not a lack of trust in the teachers but the lack of trust in ER staff!  I’ve never had an instance where I didn’t have to be a strong advocate.  This is not to say he’s never spent the night at a friend’s house or that he’s limited in other areas.  We’ve been backingpacking in the Smokey’s for days--hiked some serious trails.  He’s developed a bit of asthma due to allergies, but I haven’t pulled him from sporting events.  He takes singulair now and continues to be as fast and competitive as ever.

It’s funny someone brought up drinking.  Kyle and I have actually talked about that.  We’ve discussed what the consequences could be for him--that he would have to be more careful than most as a result.  I’d rather plant the seeds early than try to have a logical discussion while the hormones are going yo-yo!  :-)  We’ve talked about the early days of being sick, how scary the day was when he was at his worst --but we also talk about how God sent me both my parents that day ( who live out of town and are divorced and "happened" to be coming and going on the same day), how I knew things would be fine once the doctors were seeing him.  I’ve always balanced the scales with him that you have this one burden- but God made you easy-going, smart, athletic.  He sees how his sister struggles academically yet is healthy.  I’ve tried to impress upon him that everyone has "something"--we just don’t see what it is.  And everyone has to compensate for that "something".

I have a 12 yo w/o CAH.  It is so helpful to know ahead of time what things might be like when he rolls around to the same age.  Be that as it may, I am comfortable with the choices we’ve made thus far.  He’s never asked one of us not to stay at..... say, soccer camp or cub scout day camp.  He’s oblivious to us being there because he’s the one involved in the activity- not us.  We’re off reading in the shade or chatting with other parents.  We cross each bridge one at a time.  I see the time coming when something is out of the comfort zone and I’m sure we’ll reach some sort of compromise or he’ll learn about reasonable limits.  

I still hope for him to have a penpal by US mail one day.  I’d like for him to "know" someone out there and not just take my word for it.