You are so welcome. I see Danny posted something too. To anyone that reads this post, your hospital should ALWAYS be at your service. (if it is a good one) Especially a children’s hospital. There are SO many services avaliable to you. I am a parent advocate at my daughter’s hospital. They are unbelievably caring. Our Children’s Hospital has a parent resource center and a parent group that connect you with any support group for your child’s disorder. Be aware of all this. Ask your local children’s hospital what they have for you.

And to Cindi,

You said you were in a worried state. Please share. I know there are a couple that post on here and have a child with 11 beta.  (correct me if I am wrong gang) I know EVERYONE can help you feel better. I know all of us have shared your same worries one way or another. There is no reason to walk this alone. We are here if you need to bounce anything off of us. God bless!